How My Health Guide Helps
My Health Guide helps adults with learning disabilities, and it also helps their friends & family, as well as their professional care team.
Here are some examples of how My Health Guide can help people with learning disabilities and those who support them. Please let us know if you have more examples which you’re happy to share! You can also look at our Case Studies section to learn more about My Health Guide use.
My Health Guide has unlimited possibilities. It really will help put people with learning disabilities in control of their own health and wellbeing.
Trish Bailey, Clinical Care Director: Children & Learning Disability Services, Humber NHS Foundation Trust
People with learning disabilities
People can use the app to explain about their needs and concerns
Jane is frightened of the dentist but when she gets there she doesn’t know how to explain what it is that’s worrying her. Together with her community nurse they make a short video about her fears that she can show to the dentist before her appointment so he can be prepared to support her.
People can use the app to help them understand how to act on the advice they’re given
Mike has been diagnosed with diabetes and this affects what he can eat. Mike’s dietician has recorded some advice and taken some pictures of health foods using the app. Mike and his personal assistant go over these at any time to make sure they are getting things right.
People can use the app to keep and share information about themselves and their needs
When Jenny is admitted into hospital all the important information about her health needs and how to communicate with her is in her app. She takes her iPad into hospital and uses it to explain things to the medical and nursing staff.
People can use the app to record important consultations to listen again later
Meg knows when she goes to the doctor she will forget a lot of what she tells her. Using her app Meg records the consultation so she can listen to it later on with her dad and with her key worker.
The app can help medical, nursing and other staff to understand someone’s needs better. The app can give quick access to medical information but also to other key information about how to get on with someone and understand their social and family situation.
Rashid’s cerebral palsy makes it difficult to for him to tell other people what he’s thinking and feeling. When he visits his GP he takes a couple of audio clips on his app that he’s made with his p.a. The first explains that he can understand what the GP is telling him. The second clip tells the GP about the continuous pain in his foot that needs investigation.
NHS Epilepsy Specialist Nurse Heather Gregory discusses her experience of supporting users with My Health Guide and the benefits that the app provides.
The app can also be used to reinforce advice and information that may have been given verbally using the audio, video, photo and text-to-speech facilities it has.
Chloe and her support worker Trish have been working together to make a ‘My journey to work’ box on Chloe’s app. This includes pictures of the bus, and things to look out for along the route. Trish writes a message about getting off after McDonalds which Chloe can keep playing until she’s more confident she will remember. This helps Chloe to build her confidence that she can get to her new job safely.
Where appropriate, and with the person’s permission, staff can create alerts and reminders for the person they support. For example, ‘Don’t forget you’re seeing the optician in the morning at 11am’.
Calvin lives in supported housing. He is always missing appointments. But he does use his app regularly. With a little help from the Housing Association support staff to use the Appointments box in the app and the reminders it gives him, Calvin can feel more confident he will get to appointments on time.
Sometimes medical and other staff will want to track someone’s progress remotely. The app allows this.
Martin asks his patient, Tom, to record his exercise over a couple of weeks. Tom uses the app to write down when he goes for a walk and takes some pictures of where he’s been. He allows Martin access to his app through Martin’s office computer.
Using the app staff can see how others are involved with the person they support.
Tina and Doug look after their daughter, Millie, who has profound disabilities. With Tina and Doug’s agreement everyone involved with Millie’s care in health and social services can use her app to update everyone else about what they are doing and what’s been agreed.
Friends & Family
Where someone with a learning disability needs help to use the app they might look to their family for some assistance.
Carla has just downloaded My Health Guide on her iPad. She’s determined that it’s her app and she knows what she wants on it. But Carla needs help making boxes and writing things down. She agrees to let her mum help to get things started. When she gets used the app Carla finds adding photos and videos easy but still needs her mum’s help with the text.
Some people with very substantial disabilities will not be able to use the app and family members might want to use it on their behalf.
Dan has epilepsy which is not well controlled by his medication. His mum uses the app to keep a written record of his seizures. She also uses the app to show 3 videos of his complex partial seizures which have never been observed by Dan’s nurse or doctor. This information is really helpful at Dan’s medication review.